Saturday, 27 August 2016

The Taylor Sisters.

Look at these girls! From left: me, Marina, Ariel, and Morgan. They're my cousins .. I used to babysit them when they were little.

This pic was taken at a photo booth on the day Morgan was born:

Ariel, me and Marina. (STOP LAUGHING AT MY 90'S GLASSES RINI)

They are vibrant, smart, sassy, strong young women. The fighting gene is strong in my family, and even moreso with these girls. Ariel has been in hospital for over two weeks now. She was diagnosed with colitis in 2014 and has suffered serious health issues and complications ever since. Morgan was diagnosed with a rare bone cancer in her jaw when she was eight years old and spent 12 weeks in hospital. She has Crohn's disease .. I didn't know that much about Crohn's or colitis my god - the blood transfusions, chronic pain, medications, hospital stays. All while they're both trying to work and live normal happy lives. At one point recently they were sharing the same hospital room down in Westmead Hospital. Morgie was released but El stayed, deteriorated incredibly quickly, haemorrhaged .. and had emergency four-hour surgery just a few days ago. When my uncle Steve called to tell me, I held my breath. It's been terrifying.

                                             Morgan and Ariel

Morgan stayed with me recently while she went to work every day at Scenic Skyway. I took her for a driving lesson, she drives my manual car better than me. I had no answers to her questions about the clutch ... just told her to go for it and I'd be disappointed if she didn't bunnyhop or stall. (She didn't!)

So things are pretty much touch-and-go. Ellie is still in hospital going through utter hell. Yesterday I minded Marina's son Logan while her and her sister did everything they could to help, which wasn't much except just be there. I've never seen somebody in so much pain had no idea how prevalent these illnesses are, especially in Australia. Both Morgan and Ariel aren't eligible for government support even though they can't work. Ariel is doing a degree in teaching at university, but will probably have to defer until next year. She's going to be an incredible teacher.

One of their friends Amy has set up a page on the Giving Network to help:


The whole family has been overwhelmed with the love and help they've received so far, their parents Steve and Karen have fought so hard to get their girls life-saving treatment and hospital procedures for so many years now - can't even imagine how powerless and exhausting it feels.

We're all visiting Ariel every day, flurries of texts updating her progress. The poor sweetheart has suffered intense complications and had the hospitals top neurologists, cardiologists, surgeons literally running around the place as she underwent a spinal tap, MRIs, blood tests, transfusions. She's like a frail little bird, perched up in her bed. It's been really scary, and really not fair. God I hope she doesn't mind but here's her facebook profile picture. UTTER STUNNER.

                                    Morgan, Ariel, me, Marina.

Marina and I stayed up for hours the other night laughing at Ace Ventura quotes, pubes, poo and boob stories. You know when heavy stuff is happening so you just go delirious? Yeah that. I'm headed back down soon. I think I might move in. They've all unanimously voted me in as the fourth Taylor sister, matching tattoos imminent.

Do you have any knowledge of Crohn's and ulcerative colitis? There doesn't seem to be any national foundations or support groups. Please send all three girls and their parents some love and prayers. x

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